About the Sickle cell disease learning hub
This Sickle cell disease learning hub provides advice and tips to help you manage your sickle cell pain and in-depth information for you when you have questions. Use it to:
- learn new skills each week to help manage your pain and improve your functioning
- complete weekly assignments to practise and improve your skills
- access audio, video and animations to better understand key points and hear from other young people living with sickle cell disease
How the program was developed
The iCanCope with Sickle Cell program was developed by a team from The Hospital for Sick Children (Toronto), Seattle Children's Hospital, Children's Healthcare of Atlanta, Connecticut Children's Medical Center and the Centre for Global eHealth Innovation (Toronto).
The team includes researchers, doctors and other health-care professionals, and young people with sickle cell disease and/or chronic pain from across Canada and the United States.
How you can get the most out of the program
You will get the most benefit from this program if you do your best to follow these guidelines:
- Be open to trying new things and practising new skills.
- Be ready to try things several times to see if they work for you.
- Read through each skills module in the assigned order and follow the program timeline.
- If you have any issues or questions when using the program, contact your health-care provider.
What to expect as you follow the program
Most people with sickle cell pain have faced some challenges in their everyday lives due to their condition. This program will help you learn as much as possible about how to cope with sickle cell pain in your daily life. By learning the recommended skills, you may start to feel better, more in control and more able to do the things that are important to you.
To get the most out of the program, continue to use the coping strategies that work best for you after you finish the skills modules.
