How the Sickle cell Disease Learning Hub is organized

Télécharger le PDF Imprimer

PDF download is not available for Arabic and Urdu languages at this time. Please use the browser print function instead

Learn about the different sections and topics in the Sickle Cell Disease Learning Hub and what to expect from each one.

Key points

  • The Sickle Cell Disease Learning Hub has six core modules, or sections, and two optional modules. It is best to do one module each week, in order.
  • The optional modules can help you if you have difficulties with sleep and mood.
  • Each module has information and advice to help you understand and manage your sickle cell disease. There will also be a short, ungraded quiz and a weekly assignment to help you practise the skills you learned.
  • The sickle cell library can give you more information about sickle cell disease, treatments, medications and managing pain.
  • Your health-care team are the best people to answer questions about your medical needs.

Skills modules

This learning hub has six core modules (sections) and two optional modules. Consider completing the optional modules if you have difficulties with sleep and mood.

Weekly skills modules

  1. Introduction
  2. Managing stress and emotions
  3. Relaxation
  4. Sleep
  5. Communication and self-advocacy
  6. Healthy lifestyle

Optional modules

  1. Insomnia
  2. Negative emotions

It is best to work through the modules one at a time, in order, and do one module each week. You are currently working through the introduction.

What to expect in each module

  • Each module offers information, advice and guidelines to help you better understand and become more skilled at managing your sickle cell pain.
  • Near the end of each module is a short quiz. Don't worry—nobody will be keeping score! The quiz is only there to help you find out how much you have learned.
  • On the second-last page of each module is a weekly assignment to help you practise the skills you learned.

Sickle cell library

In the sickle cell library (the "About sickle cell disease" tab), you will find information on a range of topics related to sickle cell disease. The information is divided into sections, but you don't need to read them in order, and there are no quizzes. You can go through the sections at your own pace, whenever you are interested, or look them up for more information on a topic.

Remember!

The iCanCope with Sickle Cell Pain program is intended to offer additional support, on top of what you receive from your regular health-care team. The members of your health-care team are still the best people to answer any questions about your medical needs.

Dernières mises à jour: novembre 6th 2023