AboutKidsHealth for Teens

Hemophilia

English

Haematology

Teen (13-18 years);Child (0-12 years)

Arteries;Veins

Conditions and diseases

Teen (13-18 years)

Landing Page

Learning Hub

<p>Learn how you can be more proactive about your own care. Learn about how hemophilia is treated, how to manage bleeds and transitioning to adult care.</p>

<div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Introduction</h2></div><div class="panel-body list-group" style="display:none;"><p>When you switch from a paediatric care to an adult care you will need to be more proactive about your care. Find information so that you can develop the self-management tools you need to take more responsibility over your hemophilia and make this transition easier for you.</p></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3210&language=English">The impact of transition</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3211&language=English">Hemophilia and setting goals</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3257&language=English">Hemophilia and finding quality information</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3258&language=English">Hemophilia glossary</a></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">The basics of hemophilia</h2></div><div class="panel-body list-group" style="display:none;"><p>Learn the basics of hemophilia including what it is, what causes it and how is it diagnosed. Also find information about the roles of different blood vessels in your body and what happens during a bleed. </p></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3212&language=English">Understanding blood clotting</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3213&language=English">What causes hemophilia?</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3214&language=English">Diagnosing hemophilia</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3215&language=English">What happens during a bleed?</a></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Hemophilia management</h2></div><div class="panel-body list-group" style="display:none;"><p>Hemophilia treatment involves replacing the missing factor using injections. This way, you are supplying your blood with the factor it needs to form a blood clot and stop the bleed. Taking your factor as prescribed is a huge part of taking more responsibility in your hemophilia self-care. Learn how hemophilia therapy both treats and prevents bleeds and also find practical tips on infusing at home.</p></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3216&language=English">Hemophilia management: A brief history</a></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Treating hemophilia</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3217&language=English">Treating hemophilia</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3218&language=English">Understanding prophylaxis</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3219&language=English">Hemophilia and factor replacement therapy</a></li></ol></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Hemophilia at home</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3220&language=English">Self-infusion</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3222&language=English">Hemophilia home therapy: Practical tips</a></li></ol></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Managing bleeds</h2></div><div class="panel-body list-group" style="display:none;"><p>It is important to recognize bleeding as early as possible and treat it right away. Learn how to recognize bleeds and find information about the different types of bleeds and what happens when you have a bleed. Find information about accessing emergency care, how to care for a bleed and how to manage pain.</p></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3223&language=English">Recognizing bleeds</a></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Types of bleeds</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3224&language=English">Types of bleeds</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3225&language=English">Bleeds to watch out for</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3226&language=English">Life-threatening bleeds</a></li></ol></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3227&language=English">Accessing emergency care</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3228&language=English">Supportive care for hemophilia: Using R.I.I.C.E.</a></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Managing pain</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3229&language=English">Managing pain</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3230&language=English">Medicines for pain</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3231&language=English">Complementary and alternative therapies</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3232&language=English">Relaxation and distraction</a></li></ol></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Complications of hemophilia</h2></div><div class="panel-body list-group" style="display:none;"><p>The two main complications of hemophilia include joint disease and inhibitors. Learn about both of these complications and how they are diagnosed and treated.</p></div><ol class="list-group" style="display:none;"><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Hemophilia and joint disease</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3233&language=English">Hemophilia and joint disease</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3234&language=English">Complications of joint disease in hemophilia: Arthritis and synovitis</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3235&language=English">Diagnosing joint disease</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3236&language=English">Orthopaedic surgery</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3237&language=English">Physiotherapy to keep joints healthy</a></li></ol></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Hemophilia and inhibitors</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3238&language=English">Hemophilia and inhibitors</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3239&language=English">Understanding inhibitors</a></li></ol></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Hemophilia: Body and mind</h2></div><div class="panel-body list-group" style="display:none;"><p>Find information about why it is important to have healthy lifestyle habits when you have hemophilia. This section also discusses relationships and gives you tips on how to talk to your significant other about your condition. Also find information about tattoos and piercings, alcohol, smoking and drugs and how they can interfere with your health.</p></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3240&language=English">Hemophilia and keeping active</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3241&language=English">Hemophilia and everyday health care</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3242&language=English">Hemophilia and managing stress</a></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Relationships and hemophilia</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3243&language=English">Relationships and hemophilia</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3244&language=English">Hemophilia and sex</a></li></ol></li><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Lifestyle choices and your hemophilia</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3245&language=English">Lifestyle choices and your hemophilia</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3246&language=English">Hemophilia, tattoos and piercings</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3247&language=English">Hemophilia and alcohol</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3248&language=English">Hemophilia and cigarette smoking</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3249&language=English">Hemophilia and drugs</a></li></ol></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Transition of care</h2></div><div class="panel-body list-group" style="display:none;"><p>Living with hemophilia means adjusting to an additional life change as you get older: learning to take care of your hemophilia on your own. This change is not immediate and can take several months or years. Find information to help you during this transition.</p></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3250&language=English">Switching from paediatric care to adult care</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3251&language=English">Talking to health-care professionals</a></li></ol></div><div class="panel panel-primary"><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h2 class="panel-title">Looking ahead</h2></div><div class="panel-body list-group" style="display:none;"><p>As a young person living with hemophilia, you will encounter many life changes, for example you may decide to attend post-secondary school, start a new job or travel. Learn how hemophilia plays a role in all of these natural life transitions and find information and tips to help you.</p></div><ol class="list-group" style="display:none;"><li><div class="panel-heading clickable"> <span class="pull-right panel-heading-collapsable-icon"> <i class="mdi mdi-chevron-down"></i></span><h3>Hemophilia and school</h3></div><ol class="list-group" style="display:none;"><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3252&language=English">Hemophilia and school</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3253&language=English">School and lifestyle</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3254&language=English">Talking to others about your hemophilia</a></li></ol></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3255&language=English">Hemophilia and employment</a></li><li class="list-group-item"><a class="overview-links" href="/Article?contentid=3256&language=English">Hemophilia and travelling abroad</a></li></ol></div>

https://assets.aboutkidshealth.ca/AKHAssets/getting_through_the_teen_years.jpg

HemophiliaTeen