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Hemophilia and finding quality informationHHemophilia and finding quality informationHemophilia and finding quality informationEnglishHaematologyChild (0-12 years);Teen (13-18 years)NAArteries;VeinsConditions and diseasesTeen (13-18 years)NA2015-02-01T05:00:00ZVicky R. Breaky, BSc, MD, FRCPC9.0000000000000055.0000000000000452.000000000000Flat ContentHealth A-Z<p>Teens learn how to find accurate information about hemophilia.</p><p>When talking about hemophilia to your friends or people you are dating, it is always important to make sure you seek good quality information. In addition to talking to others, you may find information in magazines, books or on the Internet. Regardless of the source of information, it is up to you to decide if that information is credible. Make sure you use your discretion when researching or when hearing people’s opinions on matters.</p>
L’hémophilie et la recherche de l’information de qualitéLL’hémophilie et la recherche de l’information de qualitéHemophilia and finding quality informationFrenchHaematologyChild (0-12 years);Teen (13-18 years)NAArteries;VeinsConditions and diseasesTeen (13-18 years)NA2015-02-01T05:00:00ZVicky R. Breaky, BSc, MD, FRCPC9.0000000000000055.0000000000000452.000000000000Flat ContentHealth A-Z<p>Les ados apprennent à trouver de l’information exacte sur l’hémophilie.</p><p>Quand tu parles de ton hémophilie avec tes amis, ou avec la personne avec qui tu sors, tu dois toujours veiller à te procurer de l'information de qualité. En plus de parler avec les autres, tu peux trouver de l’information dans les magazines, les livres ou sur Internet. Peu importe la source, il te faut toujours évaluer si l’information est fiable. Assure-toi de le faire avec discrétion, particulièrement quand il s'agit de l'opinion des autres sur le sujet.</p>

 

 

Hemophilia and finding quality information3257.00000000000Hemophilia and finding quality informationHemophilia and finding quality informationHEnglishHaematologyChild (0-12 years);Teen (13-18 years)NAArteries;VeinsConditions and diseasesTeen (13-18 years)NA2015-02-01T05:00:00ZVicky R. Breaky, BSc, MD, FRCPC9.0000000000000055.0000000000000452.000000000000Flat ContentHealth A-Z<p>Teens learn how to find accurate information about hemophilia.</p><p>When talking about hemophilia to your friends or people you are dating, it is always important to make sure you seek good quality information. In addition to talking to others, you may find information in magazines, books or on the Internet. Regardless of the source of information, it is up to you to decide if that information is credible. Make sure you use your discretion when researching or when hearing people’s opinions on matters.</p><h2>Good information is both accurate and precise</h2><p>Playing darts is a good way to illustrate the difference between <strong>precision</strong> and <strong>accuracy</strong>. When you are playing darts, the closer to the centre you are the more points you get. Hitting the center is an accurate shot; hitting the dart board consistently but in the wrong spot, is precise, but inaccurate. The best dart players are both precise and accurate: they consistently hit the bulls’ eye. </p><p>This is a helpful way to think of the information we get from all the people in our lives. Similarly, credible information is both precise and accurate. You can trust information from health care professionals because there is an overall consensus in the medical community about the findings, based on research and evidence from peer-reviewed journals. Perhaps even more important, your comprehensive care team (CCT) can let you know what isn’t known or clear yet about a particular topic.</p> <figure class="asset-c-80"> <span class="asset-image-title">Dart analogy: Accuracy and precision</span> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Hemophilia_dart_analogy_MED_ILL_EN.jpg" alt="" /> </figure> <h3>Using the Internet for information</h3><p>In the past, you may have used the Internet to find out something about hemophilia. Sometime in the future, you may have a hemophilia-related question and decide to search online. The Internet is a great resource for getting information quickly. As we discussed above, it is important to be able to tell if the information you find is accurate and precise. There are many websites available on the Internet about hemophilia. However, not all these websites will have accurate information. If you are not sure about information you read from a particular website, ask your health care provider.</p><p>How can you find out whether a website is credible? </p><p>Use the acronym SCREEN:</p><table class="akh-table"><tbody><tr><td>S - Source</td><td>Does the website have a credible sponsor?</td></tr><tr><td>C - Conflict</td><td>Is the website promoting a certain product? Does it only present one side of an issue?</td></tr><tr><td>R - Review process</td><td>Did the website undergo an editing process? Does it have a seal of approval?</td></tr><tr><td>E - Evidence-based</td><td>Are scientific claims backed up by scholarly sources?</td></tr><tr><td>E - Extreme claims</td><td> If the website has exaggerated claims, it is likely profit-driven.</td></tr><tr><td>N - Not-related</td><td>If the website has information different from what you have heard from your doctor, it is probably not a reliable source.</td></tr></tbody></table><p>The following websites contain good information on hemophilia:</p><ul><li> <a href="http://www.hemophilia.ca/en/">Canadian Hemophilia Society</a> </li><li> <a href="https://www.wfh.org/en/page.aspx?pid=492">World Federation of Hemophilia</a></li><li> <a href="https://www.hemophilia.org/">National Hemophilia Foundation</a></li></ul>