MyHealth Passport is a wallet-sized card that shows what kind of transplant you have and lists your medical conditions, medications, past procedures or treatments and any allergies. It is a great way to summarize your past medical history and current health care needs.
Filling in
MyHealth Passport
Go to the MyHealth Passport site to choose your transplant type and enter your information. Only some of this information (the first page) is saved in the system. None of it identifies who you are.
The passport will take you about 20 minutes to fill in and might have some questions that you cannot answer right away. You can only save a completed version of your passport, so it is a good idea to get the answers to as many questions as possible before you start to fill it in.
To help you, we have listed the questions below that the passport will ask. You could ask your parents or make a note of the questions you don’t have answers to and bring them with you to ask at your next transplant clinic appointment.
Questions covered in MyHealth Passport
- Name
- Date of birth
- Type of transplant
- Original diagnosis or primary disease
- Place and date of transplants
- Rejection history
- Other surgeries and dates
- Current medical problems
- Current immunosuppression (checklist – no dosages)
- Previous immunosuppression (checklist- no dosages)
- Other medication (checklist – no dosages)
- Drug allergies
- Other allergies
- History of using a catheter - how often?, what size of catheter?, what route?
- Dialysis history (if any) – type? when?, for how long?
- Highest creatinine in last year
- Lowest creatinine in last year
- Current GFR (glomerular filtration rate)
- Total fluid intake
- Diet restrictions/supplement
- Viral status for CMV and EBV
- Blood group
- Latest immunizations and dates
- If you have had PTLD – when diagnosed and what treatment received
- How you pay for meds
- Your exercise routine
- Primary care provider name and number (GP or paediatrician)
- Nephrologist name and number
- Pharmacy name and number
- Any special needs
- Other information
- Who to call in case of emergency.
Reviewing and saving your information
When you put in your information, you will have a chance to review and edit it. Then you can print it or email it to yourself and anyone else you think should have a copy.
Once you complete your passport, you can carry it with you at all times and present it to providers when needed. Remember to check to see if it needs updating before you go to the adult program.
