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Adjusting to life with a chronic conditionAAdjusting to life with a chronic conditionAdjusting to life with a chronic conditionEnglishPsychiatryTeen (13-18 years)NANAHealthy living and preventionTeen (13-18 years)NA2019-03-22T04:00:00Z7.9000000000000068.5000000000000609.000000000000Flat ContentHealth A-Z<p>A diagnosis of a chronic (long-term) condition can have a major impact on your life. Living with a chronic condition often involves dealing with symptoms, taking medications, going to more medical appointments than usual and having more frequent tests and procedures to monitor any changes.</p><p>As a result, you might miss school, activities with friends or family, hobbies and sports. This is all happening when people are expecting you to become more independent, which in itself can feel stressful or overwhelming at times.</p><div class="call-out"><div class="asset-video vid-small"> <iframe src="https://www.youtube.com/embed/e0JMtabUVvQ?rel=0" frameborder="0"></iframe> <span class="vid-title">Comfort your pain</span> <span class="vid-type">audio</span></div><p> <strong>How to use: </strong>This audio meditation helps you explore and bring comfort to an unwanted thought or an area of physical or emotional discomfort. Use this meditation when you are feeling overwhelmed or experiencing physical discomfort. Follow along, focusing with kindness and curiosity on an uncomfortable area of your body.</p></div>
Apprendre à vivre avec une maladie chroniqueAApprendre à vivre avec une maladie chroniqueAdjusting to life with a chronic conditionFrenchPsychiatryTeen (13-18 years)NANAHealthy living and preventionTeen (13-18 years)NA2019-03-22T04:00:00ZFlat ContentHealth A-Z<p>Un diagnostic de maladie chronique (à long terme) peut avoir un impact majeur sur la vie de quelqu’un. Vivre avec une maladie chronique oblige souvent à prendre des médicaments, à se présenter à davantage de rendez-vous médicaux qu’à l’habitude et à devoir subir des examens et des procédures afin de surveiller l’évolution de la maladie.</p><p>Tu pourrais donc devoir t’absenter de l’école, manquer des activités avec des amis et la famille, des passe-temps ou des sports, à une période de sa vie où tout le monde s’attend à ce que tu deviennes plus autonome, ce qui en soi peut être stressant et intimidant par moments.</p>

 

 

 

 

Adjusting to life with a chronic condition3780.00000000000Adjusting to life with a chronic conditionAdjusting to life with a chronic conditionAEnglishPsychiatryTeen (13-18 years)NANAHealthy living and preventionTeen (13-18 years)NA2019-03-22T04:00:00Z7.9000000000000068.5000000000000609.000000000000Flat ContentHealth A-Z<p>A diagnosis of a chronic (long-term) condition can have a major impact on your life. Living with a chronic condition often involves dealing with symptoms, taking medications, going to more medical appointments than usual and having more frequent tests and procedures to monitor any changes.</p><p>As a result, you might miss school, activities with friends or family, hobbies and sports. This is all happening when people are expecting you to become more independent, which in itself can feel stressful or overwhelming at times.</p><div class="call-out"><div class="asset-video vid-small"> <iframe src="https://www.youtube.com/embed/e0JMtabUVvQ?rel=0" frameborder="0"></iframe> <span class="vid-title">Comfort your pain</span> <span class="vid-type">audio</span></div><p> <strong>How to use: </strong>This audio meditation helps you explore and bring comfort to an unwanted thought or an area of physical or emotional discomfort. Use this meditation when you are feeling overwhelmed or experiencing physical discomfort. Follow along, focusing with kindness and curiosity on an uncomfortable area of your body.</p></div><h2>Getting used to a new normal</h2><p>Different people respond in different ways when they are diagnosed with a chronic condition. There is no one ‘right’ way to feel or react. Some children and teens feel angry, sad, worried or even relieved to have an answer. Others might feel self-conscious because they’re different from their friends or have a hard time relating to their friends. This can all be a part of the process of adjusting to “a new normal” for you and your family.</p><p>Click through the interactive below to learn about some of the common signs people have when they are having difficulty coping with or adjusting to life with a chronic condition.<br></p><div class="symptoms-container" id="adjusting-life"> <a href="#" class="symp-fullscreen"> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/Landing_screen_mobile.png" alt="" /></a> <a href="#" class="symp-close-full material-icons pull-right">close</a> <div class="instruction-container"><div class="thumbnail-col"> <span class="symp-title">PHYSICAL</span></div><div class="thumbnail-col"><div class="symp-title"> <span class="symp-title">BEHAVIOURAL</span> </div></div><div class="anim-instructions"> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/SpeechBubbles_CopingDiff.png" alt="" /> </div></div><div class="symptoms-info"> <span class="symp-title">PHYSICAL SIGNS</span><button type="button" class="symp-close"><i aria-hidden="true" class="material-icons">home</i></button> <div class="info-card"><div class="desc"> <span class="card-title">Frustration, anger</span> <p>A chronic condition may require someone to drop or limit some favourite activities or develop new routines to manage their health. Understandably, this can sometimes lead to frustration, anger and resentment.</p></div> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/Frustration.png?RenditionID=10" alt="" /> </div><div class="info-card"> <span class="card-title">Irritability, sensitivity</span> <p>If someone isn’t coping well with a chronic condition, they may feel sensitive or self-conscious about their abilities or their routine, and may feel ‘different’ or separate from their friends.</p> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/Sensitive.png?RenditionID=10" alt="" /> </div><div class="info-card"> <span class="card-title">Anxiety and feelings of being overwhelmed</span> <p>With a chronic condition, someone may worry about many different things: their symptoms and how to manage them, fitting in with their friends, achieving what they want in life or how their health might change.</p> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/Anxious.png?RenditionID=10" alt="" /> </div><div class="info-card"> <span class="card-title">Sadness (depression) </span> <p>When adjusting to a ‘new normal’, it’s natural to feel sad about losing an old routine or adjusting expectations. Ongoing sadness can sometimes become hopelessness and despair, both signs of depression.</p> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/Sadness.png?RenditionID=10" alt="" /> </div><div class="btn-container"> <button type="button" class="symp-prev"> <i class="material-icons">chevron_left</i></button><button type="button" class="symp-next"><i class="material-icons">chevron_right</i></button> </div></div><div class="symptoms-info"> <span class="symp-title">BEHAVIOURAL SIGNS</span><button type="button" class="symp-close"><i aria-hidden="true" class="material-icons">home</i></button> <div class="info-card"><div class="desc"> <span class="card-title">Isolation</span> <p>Someone who feels sad or self-conscious about their chronic condition may avoid spending time with loved ones and friends. They may simply not be in the mood or fear that their condition would ‘get in the way’.</p></div> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/Isolation.png?RenditionID=10" alt="" /> </div><div class="info-card"> <span class="card-title">Ignoring chronic condition</span> <p>Some people may be in denial about their chronic condition and how it affects their life. They may miss medical appointments, skip medications, ignore symptoms or over-exert themselves to still feel ‘normal’.</p> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/ignorecondition.png?RenditionID=10" alt="" /> </div><div class="info-card"> <span class="card-title">Overly protective behaviour</span> <p>The need to monitor and manage a chronic condition can push some people to go too far to keep themselves ‘well’. They may rest or stay home or in bed or avoid any behaviour that they feel could lead to symptoms.</p> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/OverProtective.png?RenditionID=10" alt="" /> </div><div class="info-card"> <span class="card-title">Personality changes</span> <p>Someone dealing with a chronic condition may lose interest in hobbies and activities, suddenly change their sleep habits, start thinking differently about things or undergo other personality changes.<br></p> <img src="https://assets.aboutkidshealth.ca/AKHAssets/Signs%20and%20Symptoms/Coping%20Difficulty/PersonalityChange.png?RenditionID=10" alt="" /> </div><div class="btn-container"> <button type="button" class="symp-prev"> <i class="material-icons">chevron_left</i></button><button type="button" class="symp-next"><i class="material-icons">chevron_right</i></button><br></div></div><h3 class="main-title">COPING DIFFICULTY <span class="symp-subtitle">Common Signs</span></h3></div><p>It is important to allow yourself time to get to know what life will be like with a chronic condition. At the time of diagnosis, the condition might feel like it is taking over your life, but it will not be like this forever. The more you understand about your condition, the better you will be able to find ways to cope with and manage your symptoms. This will also make it easier for you to get on track with your “new normal”.</p><h2>Practical ways to cope with a chronic condition</h2><h3>Acknowledge your feelings</h3><p>Allow yourself to experience whatever feelings might come up – disappointment, frustration, worry, anger. Don’t ignore your feelings or pretend they don’t exist. You can’t address or manage feelings that you ignore.</p><h3>Remember that moments pass</h3><div class="call-out"><div class="asset-video vid-small"> <iframe src="https://www.youtube.com/embed/9Yr_cG4BvhI?rel=0" frameborder="0"></iframe> <span class="vid-title">Dilute the yuck</span> <span class="vid-type">audio</span></div><p> <strong>How to use: </strong>This audio meditation helps you identify pleasant or neutral experiences in the middle of discomfort. When you are overwhelmed, feeling pain or discomfort or going through any unwanted experience, use this guided meditation to help you recognize pleasant experiences, no matter how small. Follow along with the meditation to find areas that bring you comfort.</p></div><p>Remind yourself that you can get used to your condition and won’t feel sad, worried (or any other unwanted feeling) forever. The opposite is also true: just as tough moments pass, happiness doesn’t last forever either. Everybody goes through a wide range of feelings and experiences as part of a full and rich life.</p><div class="call-out"><div class="asset-video vid-small"> <iframe src="https://www.youtube.com/embed/3IK7yWuEs3k?rel=0" frameborder="0"></iframe> <span class="vid-title">Visualize your pain</span> <span class="vid-type">audio</span></div><p> <strong>How to use: </strong>This audio meditation helps you visualize your pain. When you are struggling with pain, use this meditation to help discover a new way to experience and respond to it. Follow along with the meditation so you can move from resisting and feeling frustrated about your pain to being open and curious and exploring it in detail without judgment. </p></div><h3>Talk to others</h3><p>Talk to your family, friends and healthcare team about how you feel. Talking about your feelings can help you feel better, learn to cope and <a href="/Article?contentid=3779&language=English">get support if you need it</a>.</p><h3>Take time to understand your condition</h3><div class="call-out"><div class="asset-video vid-small"> <iframe src="https://www.youtube.com/embed/HajKB6sLj7A?rel=0" frameborder="0"></iframe> <span class="vid-title">Soften, soothe, allow</span> <span class="vid-type">audio</span></div><p> <strong>How to use: </strong>This audio meditation helps you soften towards discomfort. Instead of resisting uncomfortable experiences or distracting yourself when they arise, use this meditation to help you develop an attitude of tenderness towards your suffering. As you follow the meditation, take time to allow your discomfort to come and go. If you become too uncomfortable, bring yourself back to your breath.</p></div><p>Give yourself time to get to know your symptoms and figure out when you need to contact your healthcare team.</p><p>When you are diagnosed with a chronic condition, you are hearing and reading a lot of new information. This can take some time to get used to, so don’t be afraid to ask questions, even if you asked them before but forgot the answers. Your healthcare team is there to help.</p><div class="call-out"><div class="asset-video vid-small"> <iframe src="https://www.youtube.com/embed/wWQwmCVzUtE?rel=0" frameborder="0"></iframe> <span class="vid-title">Ice cube</span> <span class="vid-type">audio</span></div><p> <strong>How to use: </strong>This audio meditation helps you find a new way to experience discomfort. Use this meditation to explore the thoughts, feelings or sensations that come with being upset or feeling physical pain. Holding an ice cube in the palm of your hand, follow along with the meditation to explore any feelings of discomfort. Have a towel handy to clean up the melted ice once the meditation is finished.</p></div><h3>Keep up with your interests</h3><p>Stay involved in your hobbies and continue to do the things you love. If you played sports, for instance, keep involved in whatever way you can. It is important to stay connected to the people and things that are important to you.</p><h3>Decide what to tell others</h3><p>Take the time to figure out how much or how little you’d like to tell other people about your chronic condition. You can share as much as or little as you would like. </p><p>It can be helpful to come up with a health summary (a one or two sentence description of your chronic condition). Once you memorize the summary, you will feel ready when people ask questions. </p><p>Of course, if you don’t want to talk about your condition on a given day, it is also okay to say so.<br></p>